Checking in for 2024-02-27:
Managed to get up this morning and stay up. Last night I went to bed around 22:30 after eating a bowl of Corn Chex (call it my comfort food if you must). Pixel didn't bother me most of the night save for a few "I have seen my reflection in my food bowl and it continues to haunt me" episodes throughout the night. But I'm up and dressed and it's before lunch time. I'll take it.
I have my consultation with Dr. Thomas Quinn at 14:00 today to discuss radiation for my liver tumor. I'll blog about that separately when I have more details. Normally I'd be pretty freaked out about this but frankly I just want some progress with this disease. I'm done being afraid of things that I can't control. I noticed this in the hospital as well where I was more resigned to having a stent put into me than worried about it. Of course now I'll have to figure out when I'll be able to get the stent pulled out of me. That's something for future me to worry about when it needs to happen.
AllianceRx is mighty confused that I'm no longer taking Regorafenib (nee: Stivarga, Regonix) any longer. I tried to explain the situation to them but I'm sure it will take them a few phone calls to figure out that I have no open prescriptions with them. I'm not particularly upset about this. I've mentioned that if you hate someone get them specialty prescriptions with AllianceRx. They do a good job of getting them to you but they are hell-bent on ensuring that you have refills and scripts to ship and aren't afraid to call you multiple times a day about the same script. I already hate using the phone on a good day so having to take their calls to tell them to please call off the figurative dogs and leave me in peace is not my idea of fun.
Managed to get some time in on my meaningful work. Hoping this continues throughout the week.
More as I know it.